Partner Resources - ASF U.S.

ASF Canada links to select resources from the Angelman Syndrome Foundation (U.S.) because they maintain a large resource library and a clinician-focused Clinical Care Toolkit. While the website is U.S.-based, much of the information is broadly applicable to individuals living with Angelman syndrome and their families, regardless of where they live. These links open on the ASF (U.S.) website in a new tab.

Start here for Canada-specific supports

Explore our Public Programs and Services page to browse by province/territory or search by keyword.

Public Programs and Services
1

ASF Resource Library

A searchable library of resources covering many topics across the Angelman journey. Use filters and search tools on the ASF site to narrow down what you need.

Best for

  • Newly diagnosed and getting oriented
  • Communication, behaviour, daily living, and school supports
  • Shareable handouts and explainers for families and caregivers
Opens the Angelman Syndrome Foundation (U.S.) website in a new tab.
2

Clinical Care Toolkit

Clinician-focused resources and care guidance developed with medical experts. Helpful to share with your healthcare team as a reference.

Includes

  • Clinical reference materials and care considerations
  • Seizure-related guidance and treatment resources
  • Therapy resources (e.g., PT/OT) and practical tools
Opens the Angelman Syndrome Foundation (U.S.) website in a new tab.

How to use these resources

1) Choose a resource

Start with the Resource Library for broad information, or use the Clinical Care Toolkit for healthcare-provider-focused guidance.

2) Search or browse

Use ASF’s search bar and filters to quickly narrow by topic, age/life stage, and resource type.

3) Save and share

Bookmark helpful pages and share them with your family, caregivers, school team, or clinicians.