Partner Resources - ASF U.S.
ASF Canada links to select resources from the Angelman Syndrome Foundation (U.S.), which maintains a comprehensive resource library, clinical care toolkit, research updates, and curated publications. While the website is U.S.-based, much of the information is broadly applicable to individuals living with Angelman syndrome and their families, regardless of where they live. These links open on the ASF (U.S.) website in a new tab.
Start here for Canada-specific supports
Explore our Public Programs and Services page to browse by province/territory or search by keyword.
ASF Resource Library
A searchable library of resources covering many topics across the Angelman journey. Use filters and search tools on the ASF site to narrow down what you need.
Best for
- Newly diagnosed and getting oriented
- Communication, behaviour, daily living, and school supports
- Shareable handouts and explainers for families and caregivers
Clinical Care Toolkit
Clinician-focused resources and care guidance developed with medical experts. Helpful to share with your healthcare team as a reference.
Includes
- Clinical reference materials and care considerations
- Seizure-related guidance and treatment resources
- Therapy resources (e.g., PT/OT) and practical tools
Angelman Syndrome Publications
Published articles focused on Angelman syndrome sourced from PubMed, the NIH biomedical literature database.
Best for
- Finding peer-reviewed Angelman syndrome literature
- Exploring specific topics and research trends
- Sharing credible references with clinicians
AS Research
ASF has invested more than $15.7 million in Angelman syndrome research worldwide to advance meaningful treatments and improve quality of life.
Includes
- Overview of ASF’s research focus and funded initiatives
- Updates on research progress and breakthroughs
- Ways to learn about and support Angelman syndrome research