CASS Directors

 Trevor Janzen, President

Trevor Janzen, President

Trevor Janzen

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

‎My youngest son, Ben, was diagnosed with Angelman syndrome in spring of 2004 at age 2-1/2.  We were fortunate to attend our first Angelman syndrome conference just 2 months later.  Our ties to Canadian AS families and the professionals who support us has grown since then.

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

I have been a part of the CASS leadership team since 2007 and a member of the Board of Directors since 2010.  I have held roles of Community Relations Committee Member, Director‎, and current President. 

WHERE DO YOU CALL HOME?

Our family resides in Calgary, Alberta.

WHAT ARE YOUR HOPES AND DREAMS FOR THE ANGELMAN COMMUNITY?

My family's first experiences at CASS conferences were profound. We left those events feeling empowered and with renewed sense of what it means to be a special needs family. Being able to observe and interact with other families who are going through many of the same issues left us with a sense of belonging and that ‘things really are okay’.  It is my hope that the Canadian Angelman Syndrome Society can continue to support families in this way. 

 
 Brad Schiele

Brad Schiele

Bradley Schiele

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

My daughter Ali was diagnosed at 18 months with Angelman Syndrome (Deletion).

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

My wife Tracy and I attended our first CASS conference in Ottawa of 2014.  In 2015, I became a Community Relations member for CASS and in 2017, the Vice President/Director   

WHERE DO YOU CALL HOME?

Saskatoon, SK

WHAT ARE YOUR HOPES AND DREAMS FOR THE CANADIAN ANGELMAN COMMUNITY?

My hope is to create opportunity for the Canadian Angelman community.  Opportunity for individuals with AS to reach their full potential in life. Opportunity for families with AS children to have access to education, support and friendship. 

 
 Terry Singleton

Terry Singleton

Terry Singleton

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

Our son Daniel was the first person in Alberta to be  diagnosed with Angelman syndrome.

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

I have been involved with CASS since 1996 after my wife Linda attended her first conference in Calgary. Before joining the CASS board, I had been involved in Kiwanis for 15 years previously, and my club had sponsored and worked with Developmental Disability causes.  

WHERE DO YOU CALL HOME?

Edmonton, Alberta

WHAT ARE YOUR HOPES AND DREAMS FOR THE ANGELMAN COMMUNITY?

My dreams for the Angelman community are an extension of those that we had for our son Daniel - A Good Life including Valued Social Roles, surrounded by friends and others that cared for him, good medical care and always opportunities for a better, more meaningful life. 

 
 Kent Fleming

Kent Fleming

Kent Fleming

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

I have a son who was diagnosed at 2 years old with Angelman syndrome.  UPD is his diagnosis.

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

We started attending conferences about 10 years ago after the diagnosis of our son

WHERE DO YOU CALL HOME?

Lloydminster, AB

WHAT ARE YOUR HOPES AND DREAMS FOR THE CANADIAN ANGELMAN COMMUNITY?

My dream has been to have our Canadian Community grow so that we can support each other better.  I would also like to see more opportunities to get together, and also would like to one day have a financial support system in place to allow for accessibility, communication, and education concerns for AS families.

 
 Kara Hanchar

Kara Hanchar

Kara Hanchar

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

We have a daughter who was diagnosed with Angelman Syndrome (UPD) at 23 months.

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

We went to our first CASS conference in Ottawa of 2014. I knew from that conference that I wanted to be a part of CASS and support CASS with fundraising and to help raise awareness to Angelman syndrome. I organized the first Walk for Angels in Edmonton in May of 2016. I then became a Community Relations Director for CASS in July 2016. 

WHERE DO YOU CALL HOME?

We live in Edmonton Alberta.

WHAT ARE YOUR HOPES AND DREAMS FOR THE ANGELMAN COMMUNITY?

My dream is to create a stronger Angelman Community through gatherings and events for families  and persons with Angelman syndrome. My focus is to create long lasting relationships and friendships which are key  for support when you have a rare disorder such as Angelman syndrome. I would love to see the Walk for Angels go national in every province, so we can all walk for Angelman syndrome on the same day at the same time.  My dream for Angelman syndrome is for everyone to talk about it!

 
 
 Marie du Plessis

Marie du Plessis

Marie du Plessis

WHAT ARE YOUR TIES TO THE ANGELMAN COMMUNITY?

My 8 year old daughter, Rylee, was diagnosed with Angelman Syndrome, deletion+ , at the age of 16 months. 

HOW LONG HAVE YOU BEEN INVOLVED WITH CASS?

I attended my first CASS conference in Kananaskis in 2012. Since then I joined the Community Relations Committee in 2017 and have joined as a Board Member in 2018. 

WHERE DO YOU CALL HOME?

Moncton, NB

WHAT ARE YOUR HOPES AND DREAMS FOR THE CANADIAN ANGELMAN COMMUNITY?  

My hopes for the Canadian Angelman Community is to create a place of acceptance and sharing. That it be sharing of knowledge about AS or communication or tricks with our kids to make our lives easier  or sharing of equipment etc.